¼sªx©Êµo®i¯e±w
Pervasive
Developmental Disorders
A. General Resources for PDD
Yale Child Study Center Developmental Disabilities Clinic & Research Home Page
- ºô¯¸«Ø¸mªÌ: Yale Child Study Center (CT).
- Offers clinical descriptions, brief case illustrations, and some diagnostic guidelines for each of the Pervasive Developmental Disorders.
- Describes the Center’s current research projects.
- Well-chosen links to relevant Web sites with brief descriptions.
- Lists print publications for each disorder, with separate lists for parents and professionals.
B. Autistic Disorder
Because Autistic Disorder and Asperger’s Syndrome are generally thought to be related, many sites focusing on one of these conditions will have information and links relevant to the other condition.
- ºô¯¸«Ø¸mªÌ: Autism Autoimmunity Project (NJ), a nonprofit charity that seeks funding for research on immune system abnormalities in autism.
- A single long page with research abstracts related to its topic.
- ºô¯¸«Ø¸mªÌ: John Wobus, a software developer and computer network administrator.
- Many categorized links to autism Web sites.
- ºô¯¸«Ø¸mªÌ: Autism-PDD Resources Network.
- Supportive resources for parents of autistic children and educators. Describes legal, educational, and medical issues related to autism.
- A Web site with practical advice.
- Capsule descriptions of many treatment approaches.
Center for the Study of Autism
- ºô¯¸«Ø¸mªÌ: Center for the Study of Autism, an affiliate of the Autism Research Institute.
- The Institute conducts research and disseminates information about autism and treatment.
- Broad-ranging directory of Web links about autism.
- See also www.autism.org, another links page from the same organization.
Cure Autism Now Foundation
- ºô¯¸«Ø¸mªÌ: Cure Autism Now Foundation, a nonprofit organization of researchers and parents focusing on biological treatments and prevention of autism.
- News releases about research and legal developments concerning autism.
- Click on “Resources?for annotated links to Web sites for parents, clinicians, and scientists.
- Includes many links that would be useful to therapists, in contrast to other sites that are more oriented toward parents.
- ºô¯¸«Ø¸mªÌ: Families for Early Autism Treatment, a nonprofit support organization for autism in northern California.
- Describes how to advocate for what this organization considers effective autism treatment.
- Links to related organizations in other locales and a collection of links about autism.
- Maintains mailing lists and an online newsletter.
- ºô¯¸«Ø¸mªÌ: Links2Go.
- Links page using a unique graphical layout.
National Alliance on Autism Research
- ºô¯¸«Ø¸mªÌ: National Alliance on Autism Research, a nonprofit research advocacy organization.
- Describes current biomedical research about autism, with citations of recent print journal articles.
- Links to autism research sites.
- ºô¯¸«Ø¸mªÌ: National Autistic Society (UK), a charity and advocacy group for people with autism and Asperger’s Syndrome and their families.
- Fact sheets about autism and Asperger’s Syndrome.
- Has a well-organized directory of links, most with brief descriptions.
- Maintains an Autism Research Database and conducts free searches for references on any aspect of autism.
C. Rett’s Disorder
International Rett Syndrome Association
- ºô¯¸«Ø¸mªÌ: International Rett Syndrome Association.
- Wide assortment of links to Web sites about Rett’s Disorder, with information on its symptoms, related disabilities, treatments, and support resources.
- ºô¯¸«Ø¸mªÌ: Rett Syndrome Association UK.
- FAQs about Rett’s Disorder, with links to similar associations around the world.
- ºô¯¸«Ø¸mªÌ: Worldwide Education and Awareness for Movement Disorders.
- Detailed fact sheet about Rett’s Disorder.
- Up-to-date bibliography of journal articles.
D. Childhood Disintegrative Disorder
- ºô¯¸«Ø¸mªÌ: Yale Child Study Center.
- Criteria, clinical features, and a brief case illustration.
E. Asperger’s Syndrome
Web sites listed in this category may also have relevant information and links for Autistic Disorder.
Asperger Syndrome Education Network of America
- ºô¯¸«Ø¸mªÌ: Asperger Syndrome Education Network of America.
- Links to full-text articles and Web sites about AS and related conditions. The articles are summarized and evaluated.
Families of Adults Afflicted with Asperger’s Syndrome
- ºô¯¸«Ø¸mªÌ: FAAAS, Inc.
- A few FAQs related to AS, along with a few relevant links.
Online Asperger Information & Support
- ºô¯¸«Ø¸mªÌ: O.A.S.I.S.
- Extensive links to Web sites and articles for nonprofessionals.
- Has a Kid’s Corner.
- Describes current research projects that seek participants.
PDD Information Pages: Asperger’s Syndrome
- ºô¯¸«Ø¸mªÌ: Yale Child Study Center.
- Detailed guidelines for assessment, making the diagnosis, and intervention in AS.
- Describes current research on AS at Yale Child Study Center.
University Students with Autism and Asperger’s Syndrome
- ºô¯¸«Ø¸mªÌ: Unknown.
- First-person accounts by college students with these disorders.
- Fact sheets with practical information to help university students cope with autism spectrum disorders.